Patient journey
Care and Support

This is Bob. He's been fighting heart failure for over 10 years.

 


Your heart failure team and the role they play

Once your diagnosis is confirmed, your specialist heart failure team, which is called a multidisciplinary team or MDT, will work with your primary care team (e.g. your GP), and should include:1

Doctor icon
A Doctor

with training in heart failure (usually a consultant cardiologist)

UK icon
A specialist heart failure nurse
UK icon
A healthcare professional

with expertise in prescribing treatments for heart failure, e.g. a pharmacist

If the specialist team needs to involve other people in your care, they will let you know who you’ll see and why.

Even if the primary care team (for example your GP and Practice Nurse) looks after your routine management, there are certain situations where the specialist MDT is still best placed to provide care. Examples include optimising treatment, initiating therapies that require specialist supervision and referral to other services such as cardiac rehabilitation. Therefore, it is important that you have access to a specialist MDT, if necessary.1

Your team should also make sure your condition is regularly monitored. The frequency of monitoring will depend on how stable your condition is but should be at least every 6 months.1 This may sometimes be done as part of a long-term conditions review if you have any other chronic conditions.

What will my care plan include?

Your specialist team creates your care plan. A care plan includes:

  • All the plans to manage your heart failure, including follow-up care, exercise programmes and access to social care
  • Education and advice on clinical signs and symptoms you may experience as a heart failure patient
  • How to arrange a consultation with a member of the specialist team
  • Contact details for the specialist team – this is usually a specialist heart failure nurse
  • Other heart failure specialists in the local area in case you need to see someone urgently
  • Extra information that may be helpful to you

When should I seek support?

You should seek medical support if you’ve noticed any deterioration
or change in your symptoms.

Meet people who are fighting failure

Sunil, Sandra, Bob and Ruth all received heart failure diagnoses. Read each of their stories to find out the impact heart failure has had on their lives and discover what they’re doing to fight the condition.

 
Help us fight heart failure

Share what you’ve learnt today and together we can raise awareness of heart failure.

I’ve just read about the patient journey, care and support for those living with heart failure. More can be done to raise awareness of the impact of heart failure and to improve care across the UK.

#fightingfailure

   
 

Sunil talks about
heart failure

Watch Sunil's documentary to
see how he set out to Fight
Failure to help others.
Watch video

Monitor your
condition

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keep track of your symptoms on a
weekly or monthly basis.
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Symptoms of
heart failure

Could you spot the symptoms of
heart failure? Learn the
symptoms and spot the signs.
Read more

References

  1. NICE. Chronic heart failure in adults: diagnosis and management. NG106. September 2018. Full guideline. Available online at: https://www.nice.org.uk/guidance/ng106/resources/chronic-heart-failure-in-adults-diagnosis-and-managementpdf-66141541311685. Last accessed: September 2020.

CVM20-C007h August 2020

Fighting Failure is a disease awareness campaign that has been sponsored and funded by Novartis Pharmaceuticals UK Ltd.

© 2020 Novartis Pharmaceuticals UK Ltd.

Novartis Pharmaceuticals UK Limited is a private limited liability company registered in England and Wales under number 119006 Registered office 2nd Floor, The WestWorks Building, White City Place, 195 Wood Lane, London, W12 7FQ.

Reporting side effects
If you get side-effects with any medication you are taking, talk to your doctor, pharmacist or nurse. This includes any possible side effects not listed in the information leaflet that comes in the pack. You can report side effects via the Yellow Card Scheme at https://yellowcard.mhra.gov.uk/ (UK).
By reporting side effects you can help provide more information on the safety of your medication.

CVM20-C007q August 2020